8/27/2010

Someone needs to Adjust her Shades: There's a Disconnect at AoA

"There are independent doctors taking the lead in providing things like diet, chelation, and hyperbaric oxygen treatment.  And if mainstream medicine doesn’t wake up to the truth about treating autism, they’ll find that no one is listening to them anymore." Dachel

Somedays, I'm just flabbergasted. Anne Dachel lives in an alternate dimension. She must, because her reality bears no resemblance to mine. Okay, I concede. Maybe I live in an alternate dimension, one where scientific evidence trumps woo. I wish.

So, I click over to look at what has Dachel calling her post "Brightness in Otherwise Dark Autism Media Coverage," thinking that they've decided to take a break from their usual steady dark and gloomy, conspiracy-theorist woo fest. Hee. No, no, no. Instead, she's found two stories where reporters report woo as reality, and promote the pushing of alternative treatments.

Okay, that's fair, I guess, to think that when reporters agree with your view of reality that it's a ray of brightness. It's like when Lauer quit kissing Wakefield's ass and got a clue, for us. 

I read a tweet from another parent wishing for a definitive answer so folks would quit arguing about vaccines. I remarked God himself could declare it and it would make no difference. It would not. Not one iota.

Vaccines are a distraction; we argue with them over it because we have to; we can't allow them to derail the vaccination program and see our nation once again live under the looming shadow of fear of deadly childhood diseases.

Most of us don't know what it's like to watch a child get sick and feel our hearts stop while we wait in fear to see if this is the illness that will take our child from us. Aren't we incredibly lucky for that? We don't tend to bury our children from a puncture wound from a nail, from a nasty cough, or when strep throat turns to rheumatic fever. We don't see these infectious diseases much. We don't see sepsis often in children from blood borne infections that spread everywhere and shut down organs.

Yeah, I'm going to hope that the majority of parents with kids on the spectrum can be reached, supported, helped, and provided with good information before they decide to go all out and start chelating and hboting their kids in the incredibly frakked up hope that it will cure their child of autism. But that's just me in my alternate dimension, where knowledge overcomes ignorance and reason prevails over rampant emotionalism.

4 comments:

the-newrepublic said...

There's a Disconnect at AoA

A bit like saying you've found something wrong on the internet...

KWombles said...

Hee, true enough. :-)

Sirenity said...

Brilliant post Kim-but I agree with the-newrepublic (grin!)

I really don't believe that the majority of parents of children with ASD are unsupported or even believe their children are vaccine damaged.
I think that the hbotting, vaccine demonizing, autism is evil crowd are just louder than those of us that are busy trying to find appropriate groups and therapies for our little ones.

Roger Kulp said...

No,Sirenity,you're wrong,and I don't think you quite get it either,Kim.

There are a lot of very sick kids out there,who have autism diagnoses,but their parents aren't reading blogs like this,they're ranting over at AoA,about how vaccines "destroyed their kid's immune system",or clogging up the mod cue over at ORAC's.The woman you once argued with over there who said her son "had an immune system like an end stage AIDS patient" pops to mind.

I know what it's like to have rheumatic fever,and have it come back every few years.I know what it's like to get a cut,or minor infection,and have it turn into sepsis,be it at age six,or age thirty-six.I know what it's like to get a FUO,and regress for eighteen months.I know what it's like to have four severe pneumonias in the space of three years...in your teens.

As you know,I have a string of diagnoses as long as your arm,and autism is only one of them.I also have a Selective IgE deficiency, autoimmune GI disease,I suspect most GI disease in autism is,and severe arterits,that started when I was ten years old,part autoimmune,part metabolic.I have only recently found out that this may have been a delayed autoimmune reaction from having chicken pox four years before my first flare, when I was six years old.They are only learning now how varicella can effect people with severe MTHFR mutations.Chicken pox is a disease now entirely preventable with vaccines,yet the antivaxers claim it's completely harmless,and MANY autistics have MTHFR muations.

Rheumatic fever is also a big concern for kids with PANDAS,something I thought I may have had,before I was tested.

As with metabolic disease,people with an "autism" diagnosis can have a lot of issues with immunity,and infection.All usually have an underlying cause,but you have to test for them,something any doctors will not do.They tell the parents,it's "just a part of autism",or if the kid is nonverbal,they don't think they are all that sick.All too often,it's bad doctors that drive parents to the dark side of the antivaxers.